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Enter Username and Password to Login or click on the Register Link above for New Members. Username:    Password:      Log me on automatically each visit     Rare Cancer Alliance Support Forum  Forum   Topics   Posts   Last Post  Rare Cancer Forum Information       Welcome, Read Me First - Public All new users MUST read these first.     7 6 Mon Dec 22, 2003 9:34 pm sharon     Posting How To's/Question/Suggestions - Public Please read before posting. Enter questions, problems, and suggestions.     52 127 Tue Sep 30, 2008 1:12 pm amy5's mom     Volunteers Needed     4 25 Mon Nov 10, 2008 11:06 am Helloangel Rare Cancers (Malignant), Borderline, Mixed Cell, Benign Tumors - Private       Acinic Cell Carcinoma     50 357 Mon Nov 03, 2008 8:45 pm GEN     Adenocarcinoma & Carcinoma     11 44 Sat Nov 01, 2008 12:56 pm daughterinneed     Adenoid Cystic Carcinoma aka: ACC, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma Moderator greggp 254 2234 Fri Nov 14, 2008 8:05 pm orchid     Adenoid Cystic Carcinoma of the Breast aka: ACC, ACCB, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma     71 374 Tue Nov 04, 2008 4:17 am debjo     Adrenocortical Carcinoma & Adrenal Cancer aka: adrenal cortical, adrenal cortex cancer, or adrenal gland     55 394 Mon Nov 17, 2008 9:19 pm lorna     Anal (Anus) Cancers adenocarcinoma basaloid, cloacogenic, epidermoid, lymphoma, Paget's, sarcoma and small cell, squamous cell, transitional cell carcinomas Moderator gabby_Ca 182 2452 Tue Nov 18, 2008 11:20 pm noble1     Appendiceal Carcinoma (Cancer of the Appendix) aka: appendix, adenocarcinoma, goblet, mucinous, signet-ring cell Note: Carcinoids have separate forum Moderator Majafrytka 128 1247 Tue Nov 18, 2008 7:42 am chca26     Bile Duct, Rare Pancreas, Gall Bladder & Cholangiocarcinoma aka: cholangiocarcinoma, bile duct cancer, gall bladder cancer, perihilar, distal & intrahepatic, ampullary, ampulla of Vater, adenocarcinoma, hereditary, Klatskin tumors     129 830 Thu Nov 13, 2008 6:40 am PatrickCorrigan     Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma     67 297 Sat Nov 08, 2008 6:46 am astrelioff     Breast Tumors & Cancers - Rare Adult & Pediatric For building a rare breast cancer database structure and sharing information     41 187 Sat Nov 08, 2008 7:02 pm kssb     Carcinoid gastroenteropancreatic neuroendocrine tumor     55 315 Thu Nov 06, 2008 5:21 pm grimj     Eye Cancer & Tumors basal, carcinoma, cell, choroidal, ciliary body, conjuctival, conjuctiva, eyelid, intraocular, iris, kaposi's, lacrimal gland adenoid cystic carcinoma, lymphoma, melanoma, retinoblastoma, rhabdomyosarcoma, sabaceous, sarcoma, squamous     15 74 Mon Aug 04, 2008 4:34 pm Michael     Head, Neck, & Oral Cancers - Rare Adult & Childhood Rare & childhood cancers of the head, neck, and oral (mouth) body sites; including thyroid, nasal and paranasal cancers, Hurthle cell carcinoma, insular thyroid cancer, lymphoma, melanoma, nasopharyngeal, rare squamous cell, sarcoma; Tongue, tonsil , and trachea cancers,     47 245 Sun Nov 09, 2008 5:52 am llrobin26     Hemangioendothelioma - Malignant & Benign     27 119 Sat Nov 15, 2008 8:53 am mmmw6     Kidney, Bladder, & Urinary Tract carcinoma (chromophobe renal cell, collecting duct, medullary renal cell, mucinous tubular, rhabdoid tumor, sarcomatoid, signet ring cell, spindle cell, transitional cell, translocation cell) renal sarcoma, and wilms tumor     50 230 Tue Oct 14, 2008 1:03 am drewdawg     Lung Cancers - Rare Adult & Childhood Including mesothelioma, pulmonary blastoma, pleuropulmonary blastoma,     11 24 Fri Nov 07, 2008 10:08 pm Stewes     Neuroendocrine Tumors - Rare or Uncommon Other Than Carcinoid     101 760 Mon Nov 17, 2008 2:44 pm carolyn714     Peritoneal Cancer of the peritoneum: mesothelioma, desmoplastic small round cell tumors, angiosarcoma, leiomyomatosis peritonealis disseminata, LPD, hemangiomatosis, primary peritoneal cancer, carcinoma, cystic mesothelioma, multilocular peritoneal inclusion cyst, serous surface papillary carcinoma, psammomacarcinoma     5 13 Sun Nov 09, 2008 5:48 pm sanitoid     Phyllodes Tumor aka: cystosarcoma phyllodes, phylloides Moderator bklyngirl19 411 7566 Mon Nov 17, 2008 5:12 pm nh4sox     Pseudomyxoma Peritonei & Rare Mucinous Tumors mucinous tumors including adenocarcinoma, carcinomatosis, disseminated peritoneal adenomucinosis, intraductal papillary, ovarian, peritoneal adenomucinosis, peritoneal mucinous carcinomatosis, pseudomyxoma peritonei     27 336 Mon Oct 06, 2008 4:18 pm nancyl     Rare Skin and Sweat, & Sebaceous Gland Cancers digitial papillary, eccrine, apocrine, mucinous eccrine, microcystic adenexal carcinoma, adenoid cystic eccrine carcinoma, sweat gland adenocarcinoma, cutaneous T-cell lymphoma     11 104 Mon Nov 17, 2008 7:31 am bergee     Reproductive - female Not Otherwise Listed     25 53 Fri Jun 13, 2008 12:51 pm Hanna     Reproductive & Testicular - male     10 16 Mon Dec 17, 2007 6:44 pm Chuckt     Sarcoma & Rare Bone Tumors Angiosarcoma, carcinosarcima, chondrosarcoma, clear cell, dermatofibrosarcoma protuberans, epithelioid, ewings, gastrointestinal stromal tumor, hemangiopericytoma, histiocytic, leiomyosarcoma, liposarcoma, malignant fibrous histiocytoma, myxofibrosarcoma, osteosarcoma, primitive neuro-echtodermal, rhabdomyosarcoma, sarcoma, soft tissue, synovial, undifferentiated pleomorphic, Wilms Tumor Moderator Regena 191 1325 Sun Nov 09, 2008 6:11 pm angelagreen     Small Intestine Cancer (Small Bowel) aka: small bowel, jejunum, ileum, duodenum, jejunal, ileal, and duodenal cancers Moderator 2ndtimer 80 639 Mon Nov 17, 2008 7:29 pm Rock1987     Teratomas and Germ Cell Tumor - Rare Only choriocarcinoma, dermoid, dysgerminoma, embryonal carcinoma, endodermal sinus tumor, EGGCT, extradonadel & germ cell tumors, GCT, germinoma, gonadoblastoma, intracranial germ cell tumors, ICGCT, mediastinal germ cell tumors, MGCT, nongerminomas, nongerminomatous germ cell tumors, nonseminomatous germ cell tumors, NS-GCT, retroperitoneal germ cell tumors, RGCT, sacrococcygeal teratoma, seminoma, teratomas, yolk sac tumor     10 69 Tue Oct 21, 2008 5:14 pm Laurel B General Forums - Public       Events - FundRaising, Conferences, etc See our Events Calendar. Announce, Discuss, Volunteer     6 10 Sun Aug 31, 2008 1:04 pm sr5577     Laws & Legal Issues - Any Country Laws and legal actions that impact cancer patients     21 69 Sun Nov 16, 2008 1:59 pm gdpawel     Local Support Groups/Organizations     29 34 Fri Aug 08, 2008 10:05 am sr5577     Prayer Requests     18 43 Fri Aug 29, 2008 6:19 pm tina2475     Seeking Others - Helping Others Looking for others with your cancer? Want to help others? Enter info here.     70 187 Sun Nov 16, 2008 3:11 pm nonna General Forums - All Members       Alternative, Complimentary, & Staying Healthy * For alternative treatments, please post evidence based information only.     17 31 Fri Feb 08, 2008 1:56 am gdpawel     Caregiver, Family, & Sibling Issues     10 11 Wed Jun 25, 2008 9:29 am sr5577     End of Life - Caregivers, Parents & Family     2 7 Tue Jul 17, 2007 5:41 am sharon     End of Life - Patient     1 2 Mon Nov 19, 2007 7:03 am julie.spouse     Faith Based - Christian     3 16 Wed Apr 16, 2008 3:20 am hummingbird     Faith Based - non-Christian This will be subdivided, by religion, as people join.     0 0 No Posts     General Topics Topics that effect both adult and childhood cancer patients of any cell type     20 43 Fri Jul 04, 2008 3:50 am timbj     Informational Websites Enter the URL's for quality informational websites. No Support Groups Please     46 55 Tue Jul 08, 2008 9:27 am sr5577     Late Effects From Cancer And It's Treatments     9 11 Tue Jan 01, 2008 10:48 am gdpawel     Questionable Treatment     6 7 Wed Jun 25, 2008 3:47 am brooksjg     Prosthesis (Prosthetic) Discussions     1 5 Wed Dec 06, 2006 8:17 pm sharon     Side Effects Of Cancer Treatments General discussions, not by cancer cell type.     7 16 Mon Jul 02, 2007 6:35 am garys     Treatment, Physician, & Facilities Share treatments, facilities, physicians involved in your rare cancer.     15 32 Wed Oct 15, 2008 4:50 pm gdpawel Special Forums - Private       Moderators & Volunteers Only Discussions of interest to volunteers & moderators.     17 31 Thu Feb 07, 2008 8:18 am Robin Mark all forums read All times are GMT - 7 Hours Who is Online Our users have posted a total of 21072 articles We have 2753 registered users The newest registered user is take1 In total there are 4 users online :: 1 Registered, 0 Hidden and 3 Guests   [ Administrator ]   [ Moderator ] Most users ever online was 71 on Fri Jun 15, 2007 5:43 pm Registered Users: debjo This data is based on users active over the past five minutes © Copyright Rare Cancer Alliance