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Enter Username and Password to Login or click on the Register Link above for New Members. Username:    Password:      Log me on automatically each visit     Rare Cancer Alliance Support Forum  Forum   Topics   Posts   Last Post  Rare Cancer Forum Information       Welcome, Read Me First - Public All new users MUST read these first.     7 6 Mon Dec 22, 2003 9:34 pm sharon     Posting How To's/Question/Suggestions - Public Please read before posting. Enter questions, problems, and suggestions.     44 114 Thu May 01, 2008 4:09 pm terry     Volunteers Needed     4 21 Mon Apr 14, 2008 5:28 pm Carolynssupport Rare Cancers (Malignant), Borderline, Mixed Cell, Benign Tumors - Private       Acinic Cell Carcinoma     48 326 Sat May 03, 2008 6:40 pm Marytag     Adenocarcinoma & Carcinoma     9 36 Sun Apr 27, 2008 7:42 pm klyders     Adenoid Cystic Carcinoma aka: ACC, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma Moderator greggp 207 1793 Sat May 10, 2008 2:48 am NovaDreamer     Adenoid Cystic Carcinoma of the Breast aka: ACC, ACCB, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma     64 319 Thu May 01, 2008 10:38 pm sharon     Adrenocortical Carcinoma & Adrenal Cancer aka: adrenal cortical, adrenal cortex cancer, or adrenal gland     40 204 Sun May 11, 2008 1:15 am keepthesmile     Anal (Anus) Cancers adenocarcinoma basaloid, cloacogenic, epidermoid, lymphoma, Paget's, sarcoma and small cell, squamous cell, transitional cell carcinomas Moderator gabby_Ca 125 1657 Sat May 10, 2008 3:48 pm cindyd     Appendiceal Carcinoma (Cancer of the Appendix) aka: appendix, adenocarcinoma, goblet, mucinous, signet-ring cell Note: Carcinoids have separate forum Moderator Majafrytka 107 1006 Tue May 06, 2008 11:41 am rubin12309     Bile Duct, Rare Pancreas, Gall Bladder & Cholangiocarcinoma aka: cholangiocarcinoma, bile duct cancer, gall bladder cancer, perihilar, distal & intrahepatic, ampullary, ampulla of Vater, adenocarcinoma, hereditary, Klatskin tumors     108 541 Sat May 10, 2008 11:29 am manjula     Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma     61 252 Mon Apr 21, 2008 7:35 am momofpierce     Breast Tumors & Cancers - Rare Adult & Pediatric For building a rare breast cancer database structure and sharing information     37 175 Tue Apr 22, 2008 3:48 pm GonnaBeatThis     Carcinoid gastroenteropancreatic neuroendocrine tumor     49 247 Thu May 01, 2008 4:12 pm cherylw     Eye Cancer & Tumors basal, carcinoma, cell, choroidal, ciliary body, conjuctival, conjuctiva, eyelid, intraocular, iris, kaposi's, lacrimal gland adenoid cystic carcinoma, lymphoma, melanoma, retinoblastoma, rhabdomyosarcoma, sabaceous, sarcoma, squamous     14 68 Sat Apr 19, 2008 10:45 pm Texas bluebonnet     Head, Neck, & Oral Cancers - Rare Adult & Childhood Rare & childhood cancers of the head, neck, and oral (mouth) body sites; including thyroid, nasal and paranasal cancers, Hurthle cell carcinoma, insular thyroid cancer, lymphoma, melanoma, nasopharyngeal, rare squamous cell, sarcoma; Tongue, tonsil , and trachea cancers,     43 226 Thu May 08, 2008 5:41 pm kalani00     Hemangioendothelioma - Malignant & Benign     24 92 Sun May 11, 2008 4:35 am Ifkovitz     Kidney, Bladder, & Urinary Tract carcinoma (chromophobe renal cell, collecting duct, medullary renal cell, mucinous tubular, rhabdoid tumor, sarcomatoid, signet ring cell, spindle cell, transitional cell, translocation cell) renal sarcoma, and wilms tumor     48 206 Tue Apr 22, 2008 8:26 pm kate555     Lung Cancers - Rare Adult & Childhood Including mesothelioma, pulmonary blastoma, pleuropulmonary blastoma,     9 19 Tue Apr 29, 2008 7:01 am ppb parent     Neuroendocrine Tumors - Rare or Uncommon Other Than Carcinoid     87 622 Tue May 06, 2008 8:21 am jen76     Peritoneal Cancer of the peritoneum: mesothelioma, desmoplastic small round cell tumors, angiosarcoma, leiomyomatosis peritonealis disseminata, LPD, hemangiomatosis, primary peritoneal cancer, carcinoma, cystic mesothelioma, multilocular peritoneal inclusion cyst, serous surface papillary carcinoma, psammomacarcinoma     4 7 Wed Jan 02, 2008 1:10 pm sharon     Phyllodes Tumor aka: cystosarcoma phyllodes, phylloides Moderator bklyngirl19 360 6461 Sun May 11, 2008 7:53 am bklyngirl19     Pseudomyxoma Peritonei & Rare Mucinous Tumors mucinous tumors including adenocarcinoma, carcinomatosis, disseminated peritoneal adenomucinosis, intraductal papillary, ovarian, peritoneal adenomucinosis, peritoneal mucinous carcinomatosis, pseudomyxoma peritonei     25 318 Thu Mar 27, 2008 11:23 am Mary_mom     Reproductive & Breast (mammary) - female Not Otherwise Listed     25 52 Wed Mar 19, 2008 2:47 pm JerryAgin     Reproductive & Testicular - male     10 16 Mon Dec 17, 2007 6:44 pm Chuckt     Sarcoma & Rare Bone Tumors Angiosarcoma, carcinosarcima, chondrosarcoma, clear cell, dermatofibrosarcoma protuberans, epithelioid, ewings, gastrointestinal stromal tumor, hemangiopericytoma, histiocytic, leiomyosarcoma, liposarcoma, malignant fibrous histiocytoma, myxofibrosarcoma, osteosarcoma, primitive neuro-echtodermal, rhabdomyosarcoma, sarcoma, soft tissue, synovial, undifferentiated pleomorphic, Wilms Tumor Moderator Regena 175 1183 Fri May 09, 2008 1:19 pm Tom Wait     Small Intestine Cancer (Small Bowel) aka: small bowel, jejunum, ileum, duodenum, jejunal, ileal, and duodenal cancers Moderator 2ndtimer 69 478 Sun May 11, 2008 5:04 pm sshultz     Sweat & Sebaceous Gland Cancers digitial papillary, eccrine, apocrine, mucinous eccrine, microcystic adenexal carcinoma, adenoid cystic eccrine carcinoma, sweat gland adenocarcinoma     9 57 Tue May 06, 2008 4:01 am gazzy55     Teratomas and Germ Cell Tumor - Rare Only choriocarcinoma, dermoid, dysgerminoma, embryonal carcinoma, endodermal sinus tumor, EGGCT, extradonadel & germ cell tumors, GCT, germinoma, gonadoblastoma, intracranial germ cell tumors, ICGCT, mediastinal germ cell tumors, MGCT, nongerminomas, nongerminomatous germ cell tumors, nonseminomatous germ cell tumors, NS-GCT, retroperitoneal germ cell tumors, RGCT, sacrococcygeal teratoma, seminoma, teratomas, yolk sac tumor     8 65 Wed Feb 06, 2008 12:24 pm trizi01 General Forums - Public       Events - FundRaising, Conferences, etc See our Events Calendar. Announce, Discuss, Volunteer     5 9 Wed May 30, 2007 11:05 pm sharon     Laws & Legal Issues - Any Country Laws and legal actions that impact cancer patients     19 63 Wed Apr 09, 2008 8:14 am sr5577     Local Support Groups/Organizations     28 32 Tue May 06, 2008 8:34 pm edclark50     Prayer Requests     15 38 Thu Nov 01, 2007 6:38 am tpapi76     Seeking Others - Helping Others Looking for others with your cancer? Want to help others? Enter info here.     65 173 Sat May 03, 2008 11:24 am tatm General Forums - All Members       Alternative, Complimentary, & Staying Healthy * For alternative treatments, please post evidence based information only.     17 31 Fri Feb 08, 2008 1:56 am gdpawel     Caregiver, Family, & Sibling Issues     9 10 Mon Jan 28, 2008 4:37 pm alright4u     End of Life - Caregivers, Parents & Family     2 7 Tue Jul 17, 2007 5:41 am sharon     End of Life - Patient     1 2 Mon Nov 19, 2007 7:03 am julie.spouse     Faith Based - Christian     3 16 Wed Apr 16, 2008 3:20 am hummingbird     Faith Based - non-Christian This will be subdivided, by religion, as people join.     0 0 No Posts     General Topics Topics that effect both adult and childhood cancer patients of any cell type     18 40 Wed Jan 16, 2008 12:31 pm sr5577     Informational Websites Enter the URL's for quality informational websites. No Support Groups Please     44 53 Sun Apr 13, 2008 2:05 pm sr5577     Late Effects From Cancer And It's Treatments     9 11 Tue Jan 01, 2008 10:48 am gdpawel     Questionable Treatment     5 5 Tue Mar 01, 2005 10:33 am sharon     Prosthesis (Prosthetic) Discussions     1 5 Wed Dec 06, 2006 8:17 pm sharon     Side Effects Of Cancer Treatments General discussions, not by cancer cell type.     7 16 Mon Jul 02, 2007 6:35 am garys     Treatment, Physician, & Facilities Share treatments, facilities, physicians involved in your rare cancer.     14 28 Fri Dec 07, 2007 6:58 pm gdpawel Special Forums - Private       Moderators & Volunteers Only Discussions of interest to volunteers & moderators.     17 31 Thu Feb 07, 2008 8:18 am Robin Mark all forums read All times are GMT - 7 Hours Who is Online Our users have posted a total of 17137 articles We have 2098 registered users The newest registered user is nando22 In total there are 3 users online :: 0 Registered, 1 Hidden and 2 Guests   [ Administrator ]   [ Moderator ] Most users ever online was 71 on Fri Jun 15, 2007 5:43 pm Registered Users: None This data is based on users active over the past five minutes © Copyright Rare Cancer Alliance